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ME/CFS is a complex, long-term condition that affects many systems in the body, including the immune, neurological, cardiovascular, and autonomic nervous systems. It is often triggered by a viral infection. Symptoms vary widely between individuals and can significantly impact daily life.
There is currently no single test to diagnose ME/CFS. Several sets of clinical criteria are used to guide diagnosis. One of the most recognisable features is post-exertional malaise (PEM). This refers to a delayed and often severe worsening of symptoms after even minimal physical, cognitive, or emotional effort. The effects of PEM can last for days or even weeks and are not relieved by rest.
Autonomic dysfunction is a hallmark feature of ME/CFS. Many people experience orthostatic intolerance, where symptoms such as dizziness, light-headedness, rapid heart rate, shakiness, or brain fog worsen when upright. These are common signs of POTS.
Identifying and managing POTS in people with ME/CFS is important. Supportive strategies such as increasing fluids and salt, wearing compression garments, and trialling appropriate medications may improve blood flow and reduce the impact of orthostatic symptoms. While these treatments are not a cure, they may help improve stability and day-to-day functioning.
In Australia, several organisations offer support, education, and advocacy for people living with ME/CFS: