Sjögren’s disease is a chronic autoimmune condition where the immune system mistakenly attacks the body’s moisture-producing glands. This often leads to symptoms such as dry eyes, dry mouth, fatigue, joint pain, and muscle aches. In some cases, the disease also affects other parts of the body, including the lungs, digestive system, skin, and nervous system.
Sjögren’s most commonly affects women, but it can also occur in men and children. The condition is frequently underdiagnosed, especially when symptoms are subtle or do not meet formal criteria. People with signs such as low blood counts, elevated immune proteins, nerve pain, or inflammation in the lungs or muscles may still be living with Sjögren’s, even if dryness symptoms are not prominent.
Diagnosis can be challenging and often requires advocacy from the person experiencing symptoms. Not everyone fits strict diagnostic categories, so ongoing monitoring and a clinician who understands the condition are important.
Sjögren’s can affect the autonomic nervous system. Many people with Sjögren’s also experience symptoms of POTS. In some cases, symptoms such as dizziness, rapid heart rate, or light-headedness when standing may be early signs of autonomic involvement. Identifying and treating POTS can reduce symptom burden and help support daily function.
Sjögren’s often coexists with other conditions and requires a multidisciplinary approach to care. This may include support from rheumatologists, neurologists, immunologists, dentists, ophthalmologists, and allied health professionals.
For more information, resources, and community support, visit Sjögrens Australia, the national organisation supporting people living with Sjögren’s disease.