Our Story

The Australian POTS Foundation was established in 2021 to address a critical gap in advocacy, support, and representation for people living with Postural Orthostatic Tachycardia Syndrome (POTS).

Driven by lived experience, the Foundation works to improve diagnosis, treatment, and understanding of POTS across Australia.

As the country’s only patient-led organisation for POTS, we’re building a connected community, expanding access to care, and advocating for lasting change in health and policy.

Our Values

Collaboration

We believe change happens when we work together.

Knowledge

We are evidence-driven, always learning and sharing.

Innovation

We champion new ideas and forward-thinking approaches.

Hope

We act with optimism, knowing better is possible.

Empowerment

We amplify voices, build confidence, and create tools for change.

Our Mission

We exist to improve recognition, care, and outcomes for people with POTS through advocacy, research, education, and community support.

We do this by:

  • Advancing research through lived experience – ensuring community voices guide studies that improve understanding, diagnosis, and treatment.
  • Ensuring equitable access to care – driving policy reform for timely, affordable, and appropriate care across Australia.
  • Educating and empowering through evidence – translating research into practical, community-informed tools for people with POTS and clinicians.
  • Strengthening community and support networks – building a connected, inclusive network for those with POTS, their families, and healthcare professionals.
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