POTS has been overlooked for too long, leaving many Australians without access to timely diagnosis or care.
At the Australian POTS Foundation, we lead national advocacy efforts to improve recognition and secure government-funded support. But we can’t do it without you — the voice of our community is vital to driving real change.
One powerful way you can help is by becoming a member. The more members we have, the more clearly our Government sees that POTS matters — and that Australians expect action. Click here to learn more about our Associate Memberships.
There are plenty of other ways to raise awareness too — scroll down to see how you can get involved. Together, we’re making POTS visible.
One way you can help is by telling your story to your local Member of Parliament. Whether you’re living with POTS or supporting someone who is, your voice matters — and sharing your experience can help drive real change.
Every MP has a duty to listen to their constituents. State MPs can help with issues like access to public health services in your area, while Federal MPs influence national policies like PBS listings, research funding, and chronic illness support.
Not sure who your MP is? You’ve got both a State and Federal MP — and both are worth contacting. You can find your federal MP here.
We’ve made it easy to get started. Use our letter template to help shape your message. Just fill in your details and share your personal experience. Don’t forget to include your name and address so they know you’re in their electorate.
Let’s work together to put POTS on the agenda. Every email counts.
Use Your Email Signature to Raise Awareness!
Every email you send is an opportunity to raise awareness. By adding one of our custom email signatures, your contacts will learn something about POTS — and the impact it has on people living with it.
We’ve provided easy-to-use text and images that you can copy and paste into your email signature settings in most email platforms. It’s a small action that helps make a big difference.
Organising a GoFundMe fundraiser is a powerful and accessible way to support research, advocacy, and better care for people living with POTS. Whether you’re a patient, carer, friend, or supporter, you can make a difference — and you don’t need to run a marathon to do it.
It’s also a great way to garner the support of your community, school, workplace, or social network, helping to raise awareness while raising funds.
Here are a few inclusive ideas to get you started:
You can learn more about how to raise funds on our Get Involved – Fundraising page.
Your fundraiser doesn’t just support vital work — it helps put POTS on the map.
To stay informed, connect with our community, and help raise awareness about POTS, follow the Australian POTS Foundation on social media. Engaging with us fosters support and understanding, empowering individuals affected by POTS. Together, we can amplify our message and drive positive change.
● Facebook: Australian POTS Foundation
● Instagram: @australianpotsfoundation
● Twitter: @AustralianPots
● LinkedIn: Australian POTS Foundation
