Resources - Australian POTS Foundation » Australian POTS Foundation

Resources & Support

This section brings together practical tools, downloadable resources, and links to organisations that may assist you in navigating life with POTS and related conditions. Whether you’re newly diagnosed, supporting someone with lived experience, or working in health or education, we hope this page helps you find the right support.

Information sheets

Downloadable resources that explain key diagnostic procedures, treatment options, and support strategies for daily life.

New Patient Information Sheet (PDF)
Active Stand Test (PDF)
Malmo POTS Survey (PDF)
GP POTS Information Sheet (PDF)
Tilt Table Test Info Sheet (PDF)

Midodrine Information Sheet (PDF)
Ivabradine Information Sheet (PDF)
Hydration Strategies (coming soon)
Compression Garment Use (coming soon)
Exercise & POTS (coming soon)

Heating & Cooling Access Guidelines (PDF)
Disability Parking Concessions Guide (PDF)
Workplace Adjustments for POTS (PDF)

POTS in School, TAFE & University (PDF)
Missing School Poster – Missing School

Pregnancy and POTS resource coming soon

Helpful organisations

Below are organisations that offer credible information, advocacy, or services connected to POTS, related conditions, or lived experience.

These conditions often overlap with POTS, and many in our community find shared support here.

Connective Tissue Disorders Network Australia (CTDNA)

ME/CFS Australia

Emerge Australia (ME/CFS)

Chronic Pain Australia

Fibromyalgia Support Network Australia

Australasian Mastocytosis Society (TAMS)

Brain Foundation

The Ehlers-Danlos Society

Disability & advocacy support

Support services and advocacy networks for people living with disability or chronic illness.

National resources

Mental health & emotional support

These services are here if you need someone to talk to, any time.

Clinician Directory